- National Tay-Sachs & Allied Diseases Association, Inc. (NTSAD) is one of the oldest patient advocacy groups in the country. We focus on funding research, supporting over 500 families and individuals worldwide, and raising awareness to prevent disease. Today, NTSAD is recognized as a leading non-profit patient group with a demonstrated commitment to service, science and support. NTSAD gives help and hope to thousands of individuals and families from many backgrounds and ethnicities who have been or are affected by Tay-Sachs, Canavan and related genetic diseases all over the world.
- NINDS Tay-Sachs Disease Information Page from the National Institute of Neurological Disorders and Stroke (NINDS); National Institutes of Health (NIH).
- Tay-Sachs Disease Genetics Home Reference from the Lister Hill National Center for Biomedical Communications (LHNCBC), U.S. National Library of Medicine (NLM), National Institutes of Health (NIH), Department of Health & Human Services (HHS), USA.gov.
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