Tourette Syndrome

Last updated: May 30, 2016

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  • Tourette Syndrome and Tic Disorders: Overview and Practical Guide to Diagnosis and Treatment by James E. Swain, M.D., Ph.D., FRCPS and James F. Leckman, M.D. Published in Psychiatry (Edgmont). 2005 Jul; 2(7): 26–36. Published online 2005 Jul. from the U.S. National Library of Medicine, NIH
  • Guide to the Diagnosis and Treatment of Tourette Syndrome (.pdf) by Ruth Dowling Bruun, M.D., Donald J. Cohen, M.D., James F. Leckman, M.D. This publication is the third edition of "A Physician's Guide to the Diagnosis and Treatment of Tourette Syndrome". It has been revised substantially to include up-to-date clinical information for physicians treating patients with this complex, frequently misunderstood neurobehavioral (neurobiological) disorder.
  • Tourette Syndrome Association, Inc.Founded in 1972 in Bayside New York, the national Tourette Syndrome Association is the only national voluntary non-profit membership organization in this field. Our mission is to identify the cause of, find the cure for and control the effects of Tourette Syndrome. We offer resources and referrals to help people and their families cope with the problems that occur with TS. We raise public awareness and counter media stereotypes about TS. Our membership includes individuals, families, relatives, and medical and allied professionals working in the field.
  • Tourette Syndrome symptoms and treatment from the Mayo Clinic
  • Tourette Syndrome Plus This site is the work of Leslie E. Packer, PhD. Any articles on the site that are not authored by me are attributed to their respective authors and are used either with permission or because they are in the public domain or used under Creative Commons License.

Hypermobility, Ehlers-Danlos, and Marfan Syndrome

Last updated: March 1, 2015

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  • Ehlers-Danlos National Foundation Ehlers-Danlos syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders, characterized by articular (joint) hypermobility, skin extensibility and tissue fragility. There are six major types of EDS. The different types of EDS are classified according to their manifestations of signs and symptoms. [US]
  • Ehlers-Danlos Support Group EDS is a genetic connective tissue condition that is a multi-systemic syndrome. Connective tissue covers over 95% of your body so there is little that escapes the symptoms. We strive to educate the medical community and fund research projects. We produce literature, DVDs and merchandise to increase understanding in managing the condition and run regular events and conferences to bring our community together. [UK]
  • Hypermobility Syndromes Association (HMSA) aims to provide support and information to those affected by one of the hypermobility syndromes and to promote knowledge and understanding within the medical community and the public at large. We hope to assist sufferers to come to terms with the the distress that these conditions can cause. The severity of the effects varies with the individual: some have few symptoms others are severely affected. [UK]
  • Hypermobility Syndrome discussions
  • Marfan Foundation Before our founding in 1981, Marfan syndrome was largely unknown or misunderstood, but our tireless efforts have led to many life-changing advances in our fight for victory over Marfan syndrome and related disorders. We tirelessly advance the research for treatments that save lives and dramatically enhance quality of life for affected people.

Rett Syndrome

Last updated: March 2, 2015

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