What is Spina Bifida? from the National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention.
Living with Spina Bifida this website provides information about living with spina bifida at different ages. Meeting the complex needs of a person affected by spina bifida involves the whole family and can be challenging at times. Finding resources, knowing what to expect, and planning for the future can help. From the National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention.
International Federation for Hydrocephalus & Spina Bifida The International Federation for Spina Bifida and Hydrocephalus (IF) is the worldwide umbrella organisation (INGO) for Spina Bifida and Hydrocephalus organisations. It was created in 1979 by national organisations of people with these impairments and their parents. Today IF's members consist of 50 regional and national umbrella organisations for Spina Bifida and Hydrocephalus. Furthermore, IF has intensive contact with regional and national organisations in over 50 countries, spread over five continents. IF's activities are focused on the dissemination of information and expertise throughout the world to families, individuals, professionals and volunteers involved in the field of Hydrocephalus and Spina Bifida.
Spina Bifida Association of America serves adults and children who live with the challenges of Spina Bifida. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and service.
Spina bifida • Hydrocephalus • Information • Networking • Equality (Shine) As of the 20th October 2011, Spina bifida • Hydrocephalus • Information • Networking • Equality – Shine, became the new name for the Association for Spina Bifida and Hydrocephalus (ASBAH). Shine is a registered charity, which was formed in 1966, initially to help families and individuals affected by spina bifida and hydrocephalus. Today, Shine is a community of 75,000 individuals, families, friends, and professionals, sharing achievements, challenges and information on living with hydrocephalus, or spina bifida, and related issues. Working together throughout England, Wales and Northern Ireland, we strive to overcome challenges and achieve the best for you and your family.
Spina Bifida from the National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH). Updated
National AccessAbility Week (NAAW) with the coming into force of the Accessible Canada Act in July 2019, NAAW is now legislated. This means that it must take place every year, starting on the last Sunday in May.
Adaptech Research Network In partnership with NEADS, the Adaptech Research Project conducts research on the use of computer technologies by Canadian college and university students with disabilities. [Québec]
Alliance for Equality for Blind Canadians (AEBC) is dedicated to promoting the increased inclusion of blind, deaf-blind and partially sighted Canadians in all aspects of social life, from employment to participation in elections. Our members, comprised of blind, deaf-blind and partially sighted consumers and supporters from across the country, participate in working groups and committees, engage with local, city-based chapters, and engage in public awareness and education activities on a daily basis.
Brainstreams is the official website of the The BC Brain Injury Association (BCBIA). We are a non-profit provincial organization in British Columbia serving the interests of the acquired brain injury population. [British Columbia]
Canadian Accessibility Network (CAN) is a a national partnership in advancing accessibility for persons with disabilities through Research, Design and Innovation, Education and Training, Policy, Employment, and Community Engagement.
Canadian Association for Supported Employment (CASE). CASE is a national member association for the supported employment sector. They work with employment service providers, employers, community allies and stakeholders working toward employment inclusion of people experiencing disability. They strive to facilitate full participation in the labour force by offering resources, expertise, and support to service providers. New
Canadian National Institute for the Blind (CNIB) CNIB is the primary source of support, information and most importantly, hope, for all Canadians affected by vision loss. Founded in 1918, CNIB has become one of the world's largest private agencies committed to vision health issues. CNIB is one of Canada’s oldest charitable organizations and receives its funding through the generous support of individuals, corporations, governments, and other funders. Their Web site is very accessible and allows users to use four different text sizes and three variations in contrast for the site (default, high, and soft).
Opportunities Fund for Persons with Disabilities. The Opportunities Fund for Persons with Disabilities assists persons with disabilities to prepare for, obtain and maintain employment. It supports persons with disabilities in overcoming barriers to participation in the Canadian labour market, and it supports employers to hire persons with disabilities. New
Bayshore Health Services Residential Rehab [formerly Neurologic Rehabilitation Institute of Ontario] a program to assist persons with moderate to severe brain injuries and other neurological impairments in achieving success in increasing their level of independence.
VisionKey brings the latest in wearable eye-controlled communication technology to enable users with ALS, brainstem stroke, muscular dystrophy, CP, Locked-in-Syndrome, Quadriplegia, or traumatic brain injury to use eye movements for complete computer access and for augmentative communication. Available in English, French, and Spanish and runs on Macintosh and Windows platforms. Manufactured by H.K. EyeCan.