Sight / Vision Loss Resources

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Resources

  • About Glaucoma from the BrightFocus Foundation. Learn about some of the promising areas of glaucoma research that we are currently funding. BrightFocus Foundation is a nonprofit organization supporting research and providing public education to help eradicate brain and eye diseases, including Alzheimer's disease, macular degeneration, and glaucoma. We are working to save mind and sight.
  • ADA Guide for Places of Lodging: Serving Guests Who Are Blind Or Who Have Low Vision
  • All About Vision provides patient information about vision
  • American Council of the Blind The American Council of the Blind (ACB) was founded in 1961 but many of its state affiliates and local chapters have a history that can be traced back to the 1880s. Since its inception, ACB and its affiliates have been at the forefront of the creation of policies that have shaped the opportunities that are now available to people with disabilities in our country. ACB has also effectively collaborated with Vision Rehabilitation Service providers to develop the principles and values that should be at the heart of providing adjustment and placement services to people who are blind.
  • American Foundation for the Blind (AFB) As a national nonprofit with offices in five U.S. cities, the American Foundation for the Blind (AFB) is a leader in expanding possibilities for the more than 20 million Americans living with vision loss. We champion access and equality, and stand at the forefront of new technologies. Our award-winning programs directly address the most pressing needs of people with vision loss and their families. Like Helen Keller, AFB's most famous ambassador, we are committed to creating a more equitable world for people with disabilities. From infancy to education, career, and retirement, AFB is there to help at every stage of life.
  • American Printing House for the Blind The American Printing House for the Blind (APH) is the world's largest nonprofit organization creating educational, workplace, and independent living products and services for people who are visually impaired.
  • APH VisionAware – Resources for Independent Living with Vision Loss.
  • Armor-Tile provides detectable warning and wayfinding solutions for the visually impaired.
  • "Bibliography for Performance Systems Technology (PST) and Computer-based Instruction (CBI)" published in the ACM SIGDOC Journal of Computer Documentation (JCD) [The JCD is no longer being produced. ACM SIGDOC members are able to get copies of archived journals.]
  • Blindness and vision impairment Fact Sheet from the World Health Organization (WHO)
  • Blindness and Visual Impairment Resources Lensshopper.com is an independent information website about contact lenses, not affiliated with any retailer or distributor.
  • Canadian National Institute for the Blind
  • Charles Bonnet Syndrome Foundation for phantom vision
  • Columbia Lighthouse for the Blind (Washington, DC). Since 1900, Columbia Lighthouse for the Blind has been dedicated to helping the blind or visually impaired population of the greater Washington region overcome the challenges of vision loss. Our work enables people of all ages who are blind or visually impaired to remain independent, active and productive in society. Columbia Lighthouse for the Blind's (CLB) programs and services include training and consultation in assistive technology, employment marketing skills training, career placement services, comprehensive low vision care, and a wide range of counseling and rehabilitation services.
  • Journal of Visual Impairment & Blindness is the essential professional resource for information about visual impairment. The international peer-reviewed journal of record in the field, it delivers current research and best practice information, commentary from experts on critical topics, news, and events.
  • Leber Congenital Amaurosis, Type I; LCA1 (congenital retinal blindness) from the Online Mendelian Inheritance in Man (OMIM) database, Johns Hopkins University. Leber congenital amaurosis comprises a group of early-onset childhood retinal dystrophies characterized by vision loss, nystagmus, and severe retinal dysfunction. Patients usually present at birth with profound vision loss and pendular nystagmus. Electroretinogram (ERG) responses are usually nonrecordable. Other clinical findings may include high hypermetropia, photodysphoria, oculodigital sign, keratoconus, cataracts, and a variable appearance to the fundus (summary by Chung and Traboulsi, 2009).
  • Lighthouse International Lighthouse International "is a leading non-profit organization that helps people of all ages who are at risk for, or are experiencing, vision loss."
  • Media Access Group at WGBH develops and distributes captioning, video description, and MoPix means of access to movies and television for viewers who are deaf or hard of hearing.
  • National Captioning Institute provides services to deaf, hard of hearing and other people who, for whatever reason, wherever situated and irrespective of their economic conditions, are limited in their ability to participate fully in the world of communications, heard, seen or written.
  • National Center for Accessible Media (NCAM) of CPB/WGBH is a research and development facility dedicated to the issues of media and information technology for people with disabilities in their homes, schools, workplaces, and communities.
  • National Federation of the Blind
  • NIH National Eye Health Education Program For more than 50 years, the National Eye Institute (NEI) has been on the front lines of vision research— and we continue to support cutting-edge research projects that investigate new ways to prevent, treat, or even reverse vision loss. We also work hard to help the public learn about vision problems and how to keep their eyes healthy.
  • The National Library Service for the Blind and Print Disabled administers a free national library program that provides braille and recorded materials to people who cannot see regular print or handle print materials. Established by an Act of Congress in 1931 to serve blind adults, the program was expanded in 1952 to include children, in 1962 to provide music materials, in 1966 to include individuals with other physical disabilities that prevent reading regular print, and in 2016 to permit NLS to provide refreshable braille displays. The NLS program is funded annually by Congress, and books and materials are mailed as "Free Matter for the Blind or Handicapped" through a separate appropriation to the United States Postal Service. Cooperating network libraries are funded through a combination of state, local, and/or federal sources.
  • Vision Australia – blindness and low vision services in Australia. A comprehensive site with many useful resources.
  • Visual Disabilities from WebAIM describes the types of vision disabilities: blindness, color-blindness, and low vision.
  • Vision Rehabilitation: Helping People with Low Vision (.pdf), NIH National Eye Health Education Program.

Artificial Vision

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Resources

  • vOICe Artificial Vision System vision technology for the totally blind.
  • NovaVision VRT: Vision Restoration Therapy addressing vision loss after stroke, traumatic brain injury (TBI), or optic nerve injury
  • Tasting the Light: Device Lets the Blind "See" with Their Tongues A pair of sunglasses wired to an electric "lollipop" helps the visually impaired regain optical sensations through a different pathway.
  • Tongue Display Unit (TDU) for electrotactile spatiotemporal pattern presentation Download the Tounge Display Unit paper (.pdf)
  • FDA Approves BrainPort, Device Which Allows Blind To "See" With Tongue: Re-Teaching The Brain To Overcome Disabilities [VIDEO]. The BrainPort V100 is a square, battery-powered plastic lollipop connected to a pair of sunglasses. The sunglasses have a tiny video camera mounted on one of the lenses that captures images of objects surrounding the wearer. The images are then converted into electrical impulses that are sent to electrodes in the lollipop. When the lollipop is put on the tongue, these impulses can be felt as vibrations, which the brain then interprets to give the wearer the size, shape, and position of objects nearby for a better awareness of their surroundings.

    When a person loses a sense, either from birth or injury, their brain develops new neural pathways to compensate for the disability. For example, if a person's eyesight is unbalanced, they may see flat surfaces as being slanted. The brain's plasticity readjusts the horizontal plane with new neural pathways that correct the balance. The BrainPort V100 retrains the brain to help the wearer navigate around objects and barriers.

  • BrainPort Vision Pro. The new BrainPort Vision Pro is a 2nd generation oral electronic vision aid that provides electro-tactile stimulation to aid profoundly blind patients in orientation, mobility, and object recognition as an adjunctive device to other assistive methods such as the white cane or a guide dog.  Updated