What is Spina Bifida? from the National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention.
Living with Spina Bifida this website provides information about living with spina bifida at different ages. Meeting the complex needs of a person affected by spina bifida involves the whole family and can be challenging at times. Finding resources, knowing what to expect, and planning for the future can help. From the National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention.
International Federation for Hydrocephalus & Spina Bifida The International Federation for Spina Bifida and Hydrocephalus (IF) is the worldwide umbrella organisation (INGO) for Spina Bifida and Hydrocephalus organisations. It was created in 1979 by national organisations of people with these impairments and their parents. Today IF's members consist of 50 regional and national umbrella organisations for Spina Bifida and Hydrocephalus. Furthermore, IF has intensive contact with regional and national organisations in over 50 countries, spread over five continents. IF's activities are focused on the dissemination of information and expertise throughout the world to families, individuals, professionals and volunteers involved in the field of Hydrocephalus and Spina Bifida.
Spina Bifida Association of America serves adults and children who live with the challenges of Spina Bifida. Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of those with Spina Bifida and those whose lives are touched by this challenging birth defect. Its tools are education, advocacy, research, and service.
Spina bifida • Hydrocephalus • Information • Networking • Equality (Shine) As of the 20th October 2011, Spina bifida • Hydrocephalus • Information • Networking • Equality – Shine, became the new name for the Association for Spina Bifida and Hydrocephalus (ASBAH). Shine is a registered charity, which was formed in 1966, initially to help families and individuals affected by spina bifida and hydrocephalus. Today, Shine is a community of 75,000 individuals, families, friends, and professionals, sharing achievements, challenges and information on living with hydrocephalus, or spina bifida, and related issues. Working together throughout England, Wales and Northern Ireland, we strive to overcome challenges and achieve the best for you and your family.
Spina Bifida from the National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health (NIH). Updated
Hyperlexia from the Center for Speech and Language Disorders. Hyperlexia is a syndrome that is characterized by a child’s precocious ability to read (far above what would be expected at their age, between 2 and 5), significant difficulty in understanding and using verbal language (or a profound nonverbal learning disability) and significant problems during social interactions.
Hyperlexia – K12 Academics education resource. Hyperlexia is a condition in which the main characteristics are an above normal ability to read accompanied with a below normal ability to understand spoken language. The symptoms are closely related to those of autism and some consider it to be an autism spectrum disorder whereas others contest it to be a completely different condition.
The Hyperlexia Parents Network contains articles, stories, a forum, parent support, and information about a book written by a parent of a child with Hyperlexia.
What is Hyperlexia? Hyperlexia has many characteristics similar to autism and some consider it to be an autism spectrum disorder. Because of its close association with autism, hyperlexia is often misdiagnosed. The main characteristics of hyperlexia are an above normal ability to read coupled with a below normal ability to understand spoken language. The severity, frequency, and grouping of the symptoms listed on this page will determine an actual diagnosis. New
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