- American Stoke Association a division of the American Heart Association, provides information about risk assessment, prevention, treatment, recovery, caregiving, stroke family support information, and the usual "other"
- "Aspirin for Reducing Your Risk of Heart Attack and Stroke: KNOW THE FACTS" from the U.S. food and Drug Administration, Center for Drug Evaluation and Research (CDER)
- PDF version (.pdf)
- About Stroke from the American Heart Association / American Stroke Association.
- National Institute of Neurological Disorders and Stroke (NINDS)
- Inclusion Body Myositis (IBM) Information Inclusion body myositis (IBM) is one of a group of muscle diseases known as the inflammatory myopathies, which are characterized by chronic, progressive muscle inflammation accompanied by muscle weakness.
- National Stroke Association (NSA)
- Stroke: Know the Risks from the American Heart Association (.pdf)
What is Rett Syndrome?
Rett syndrome is a rare genetic neurological disorder that occurs almost exclusively in girls and leads to severe impairments, affecting nearly every aspect of the child's life: their ability to speak, walk, eat, and even breathe easily. The hallmark of Rett syndrome is near constant repetitive hand movements. Rett syndrome is usually recognized in children between 6 to 18 months as they begin to miss developmental milestones or lose abilities they had gained. Rett syndrome is caused by mutations on the X chromosome on a gene called MECP2. There are more than 900 different mutations found on the MECP2 gene. Most of these mutations are found in eight different “hot spots.” Rett syndrome is not a degenerative disorder with individuals living to middle age or beyond. It is not inherited. Rett syndrome occurs worldwide in 1 of every 10,000 female births, and is even rarer in boys. Rett syndrome can present with a wide range of disability ranging from mild to severe. The course and severity of Rett syndrome is determined by the location, type and severity of the mutation and X-inactivation.
Symptoms May Include
- Loss of speech
- Loss of purposeful use of hands
- Involuntary hand movements such as handwashing
- Loss of mobility or gait disturbances
- Loss of muscle tone
- Seizures or Rett “episodes”
- Breathing issues
- Sleep disturbances
- Slowed rate of growth for head, feet and hands
- About Rett Syndrome from the International Rett Syndrome Foundation (IRSF).
- International Rett Syndrome Foundation (IRSF) The core mission of the IRSF is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services.
- NINDS Rett Syndrome Information Page from the National Institute for Neurological Disorders and Stroke (NINDS), National Institutes for Health (NIH).