Spinal Cord Injury Resources

  • Florida Brain and Spinal Cord Injury Program (BSCIP) The BSCIP Resource Center provides brain and spinal cord injury survivors, family members, caregivers, friends and professionals with educational information and resources needed to support them in the community.  Updated
  • National Spinal Cord Injury Association (NSCIA) a program of the United Spinal Association. National Spinal Cord Injury Association, the membership division of United Spinal, was founded in 1948 to improve the lives of all paralyzed Americans.
  • Designing a Wheelchair Accessible Kitchen
  • United Spinal Association United Spinal Association's mission is to improve the quality of life of all people living with spinal cord injuries and disorders (SCI/D). We believe no person should be excluded from opportunity on the basis of their disability. Our goal is to provide people living with SCI/D programs and services that maximize their independence and enable them to remain active in their communities.
  • Spinal Cord Injury Resources by State spinal cord injury related U.S. State organizations and associations that provide resources to those in their state.
  • Stay Safe: Preventing Spinal Cord Injury (.pdf). The United Spinal Association has a publication about preventing spinal cord injury. Not many people believe they can become a statistic of spinal cord injury; however, it happens every day. It is important to know that spinal cord injury can happen to anyone at any time. There are some protective measures you can take to avoid getting a spinal cord injury.
  • What is Spinal Cord Injury? This is a general introduction to SCI/D. Understanding what a spinal cord injury is and what diseases affect the spinal cord is not only the first stage of rehabilitation, it is also an important key to prevention.  Updated
  • Women's Health Issues. Check here for a variety of spinal cord injury or disorder-related issues that are unique for women including pregnancy, breastfeeding, maternal health, menopause, health related issues of heart disease, osteoporosis, and breast health.  Updated
    • "Access to Women's Health Equipment — Inaccessible Diagnostic Tools Risk Lives of Women with Disabilities" by Tom Scott.  New
    • Osteoporosis and Spinal Cord Injury
    • Menopause
    • Aging with SC
    • Women with Disabilities
    • Women and Spinal Cord Injury
    • Women and Change
    • Center for Research on Women with Disabilities
    • Reproductive Health
    • Reproductive Health for Women with Spinal Cord Injury (Video)
    • Sexuality for Women with Spinal Cord Injury
    • Pregnancy and Women with SCI
    • Pregnancy after SCI: A Story of Two Women
    • Preventive Health Issues
    • Relevant articles
    • Disability Organizations for Women
    • womenshealth.gov
  • Women on Wheels (WOW) Support Group  New

Epilepsy

  • Epilepsy in Animals Canine epilepsy is often genetic but epilepsy in cats and other pets is rarer, likely because there is no hereditary component to epilepsy in these animals. Epilepsy is most commonly recognised by involuntary movements of the head and limbs, however other characteristics include salivation, and lack of bodily functions and anxiety. Animals often lose consciousness and are not aware of their surroundings. When an animal has a seizure, make sure they are lying down on the floor away from any water, stairs, or other animals. Lay your hands on the animal to let it know you are there with them. Do not try to grab their tongue or clear their mouth as there is a high chance you will be bitten; contrary to popular myth, neither humans nor animals can "swallow their tongue" during a seizure, so it is safest to stay well away from their mouth during one. [from Wikipedia.]
  • Assistance / Service Animals
  • Epilepsy Association of Central Florida (EACF)
  • Epilepsy Foundation of America offers comprehensive, medically approved consumer information about epilepsy and seizures and is the trusted source for millions of people who seek reliable information about epilepsy. The Epilepsy Foundation of America® (merged with the Epilepsy Therapy Project) is the national voluntary health agency dedicated solely to the welfare of the more than 2 million people with epilepsy in the U.S. and their families. The organization works to ensure that people with seizures are able to participate in all life experiences; to improve how people with epilepsy are perceived, accepted and valued in society; and to promote research for a cure. In addition to programs conducted at the national level, epilepsy clients throughout the U.S. are served by 48 Epilepsy Foundation affiliates around the country.
  • International Bureau for Epilepsy (IBE) is the recognized international umbrella body representing national epilepsy organizations that have a specific interest in improving the social condition and quality of life for people living with epilepsy and their caregivers.  New
  • Flickering content or high contrast oscillating patterns may trigger Photosensitive Epilepsy, an article from Juicy Studio about the need to avoid flickering Web content, using photosensitive epilepsy as the basis for discussion.  Updated
  • Photosensitivity and Seizures Information from the The Epilepsy Foundation of America®
  • Temporal Lobe Epilepsy is epilepsy that is characterized by abnormal electrical activity in the temporal lobe of the brain. This activity does not cause grand mal seizures; rather, it causes unusual behaviors and patterns of cognition. [from Wikipedia.]  Updated
  • Hypergraphia, a driving compulsion to write (or create in another media such as painting, blogging, etc.). [from Wikipedia.]  Updated
  • "Compulsive painting: a variant of hypergraphia?", by A. Panico, A. Parmegriani, and M.R. Trimble. Behavioural Neurology (1996), 9, 177-180 (.pdf)  New