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Hypermobility, Ehlers-Danlos, and Marfan Syndrome

Cynthia A. Lockley on 4 May 20082 Oct 2023

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Ehlers-Danlos Society Ehlers-Danlos syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders, characterized by articular (joint) hypermobility, skin extensibility and tissue fragility. There are six major types of EDS. The different types of EDS are classified according to their manifestations of signs and symptoms. Note: in 2016, the EDNF became the Ehlers-Danlos Society. [US] Updated
Ehlers-Danlos Support Group EDS is a genetic connective tissue condition that is a multi-systemic syndrome. Connective tissue covers over 95% of your body so there is little that escapes the symptoms. We strive to educate the medical community and fund research projects. We produce literature, DVDs and merchandise to increase understanding in managing the condition and run regular events and conferences to bring our community together. [UK]
Hypermobility Syndromes Association (HMSA) aims to provide support and information to those affected by one of the hypermobility syndromes and to promote knowledge and understanding within the medical community and the public at large. We hope to assist sufferers to come to terms with the the distress that these conditions can cause. The severity of the effects varies with the individual: some have few symptoms others are severely affected. [UK]
Marfan Foundation Before our founding in 1981, Marfan syndrome was largely unknown or misunderstood, but our tireless efforts have led to many life-changing advances in our fight for victory over Marfan syndrome and related disorders. We tirelessly advance the research for treatments that save lives and dramatically enhance quality of life for affected people.

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Fibromyalgia Syndrome (Muscle Pain)

Cynthia A. Lockley on 4 May 200814 Oct 2023

Accommodation and Compliance Series: Employees with Fibromyalgia Syndrome provided by the Office of Disability Employment Policy, U.S. Department of Labor (.pdf)
American Fibromyalgia Syndrome Association (AFSA) funds research for NIH grants to study fibromyalgia syndrome (FMS) and chronic fatigue syndrome (CFS).
Arthritis Foundation — Fibromyalgia: "What Is Fibromyalgia?"
Excerpt from "The Complete Idiot's Guide to Fibromyalgia: Quick and Easy Tips for Feeling Better", by Lynne Matallana, ImmuneSupport.com. (Buy the book…)
American Academy of Medical Acupuncture (AAMA)
American Association of Acupuncture and Oriental Medicine (AAAOM) is the oldest and largest national membership organization of Acupuncture and Oriental Medicine (AOM) practitioners and supporters that serves to advance the profession and practice of AOM.
American Academy of Pain Medicine (AAPM) The practice of pain medicine is multidisciplinary in approach, incorporating modalities from various specialties to ensure the comprehensive evaluation and treatment of the pain patient. AAPM members represent a variety of origins including anesthesiology, internal medicine, neurology, neurosurgery, orthopedic surgery, physiatry, psychiatry, psychology, and neuroscience.
Musculoskeletal Pain – Cleveland Clinic Musculoskeletal pain affects the bones, muscles, ligaments, tendons, and nerves. It can be acute (having a rapid onset with severe symptoms) or chronic (long-lasting). Musculoskeletal pain can be localized in one area, or widespread.
Fababloc New
- "Efficacy of Farabloc as an analgesic in primary fibromyalgia" by Bach, Gerhard L, and Douglas B Clement. Clinical Rheumatology vol. 26,3 (2007): 405-10. doi:10.1007/s10067-006-0494-9 New
"Low-energy pulsed electromagnetic field therapy reduces pain in fibromyalgia: A randomized single-blind controlled pilot study" By Massimo Giovale, Lucia Novelli, Luca Persico, Francesca Motta, Stefano Rampoldi, Rossana Galli, Patrizia Monteforte, Marica Doveri, Gerolamo Bianchi, Carlo Selmi, and Luigi Carlo Bottaro. From the journal Rheumatology and Immunology Researchhttps://doi.org/10.2478/rir-2022-0013 New
Electromagnetic Field Therapy: A Rehabilitative Perspective in the Management of Musculoskeletal Pain – A Systematic Review
"Fibromyalgia", by Justin Wasserman, MD, 2004 (.pdf)
Fibromyalgia from the American College of Rheumatology, 2021 update. Updated
- PDF version: Fibromyalgia (127 KB .pdf)
Fibromyalgia: An "Invisible" Disability
Fibromyalgia Fact Sheet from the Office on Women's Health in the Office of the Assistant Secretary for Health at the U.S. Department of Health and Human Services
Chronic fatigue syndrome from the Office on Women's Health in the Office of the Assistant Secretary for Health at the U.S. Department of Health and Human Services
"Differential diagnosis: myofascial pain", in ;Fibromyalgia Syndrome: A Practitioner's Guide to Treatment, by Jan Dommerholt, PT, MPS and Tamer S. Issa, PT, DPT (.pdf)
Fibromyalgia Monograph: Fibromyalgia: Symptoms, Diagnosis, Treatment & Research (625.5 KB .pdf) from the National Fibromyalgia Partnership, Inc.
National Fibromyalgia Association (NFA) source for what's new in fibromyalgia research and education. Updated
Public Witness Testimony on Fibromyalgia Syndrome (FMS), to The House Appropriation's Subcommittee on Labor, Health and Human Services, and Education and Related Agencies by Ronald C. Kramis, Ph.D. – January 29, 1998 PDF of Congressional testimony PDF of Congressional testimony (166 KB .pdf)
"Myofascial pain and fibromyalgia: Diagnosis and treatment", by Robert Gerwin, M.D. neurologist specializing in pain and rehabilitation medicine (.pdf) Journal of Back and Musculoskeletal Rehabilitation, Jan 1 1998.